Upcoming and past events
This page lists upcoming and past events related to Koolen-de Vries syndrome. Events may include family meetups, clinician webinars, research updates, and awareness days.
What you will find here
- Webinars and talks from researchers or clinicians
- Family meetups and community gatherings
- Conferences and rare disease events
- Awareness and fundraising activities
Submit an event
If you are organizing an event and want it listed here, please contact us with the details below:
- Event title and short description
- Date, time, and time zone
- Location or online link
- Intended audience (families, clinicians, researchers, etc.)
- Registration link and deadline (if any)
- Accessibility notes (captions, language, recordings)
Planning notes
We aim to share events that are evidence-based and supportive. If you are unsure whether your event is a good fit, send us a message and we will help.
No events yet?
If the list is empty, check back soon or follow our updates. You can also suggest events from your local community.