Contact
Use the contact form on this page to send a message to the team.
What we can help with
- General questions about Koolen-de Vries syndrome
- Finding trustworthy resources and references
- Suggestions for events or videos to add to the site
- Partnerships with clinicians, researchers, or community groups
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Response time
We respond as soon as possible. Please allow a few business days during busy periods.
Medical advice
This site does not provide medical advice. For urgent or personal medical concerns, contact your healthcare provider or local emergency services.
Language
We can respond in Dutch or English.